Hello all, I have started this blog as a way to keep everyone informed about what is going on with my current medical issues:
I had begun to tire more and started retaining fluids back at the end of May. In June I had a stress test that revealed that my Heart Function have decreased. I met with Dr. Allada on August 8th after being unable to secure a time that was convient for both of us to meet. At first the plan was to admit me for a few days and relieve the fluid before doing the Cath and TEE while there we would do all necessary test that would be need for evaluation by the Transplant team. However on Sunday of this past weekend I saw Dr. Allada and a new plan was put into place after he consulted with other Congenital Heart Docs and Adult Heart Docs and the Transplant folk. The new plan:
I am scheduled to have a Heart Cath and TEE That is twhere they put a tube down your throat and look at your heart on September 25, 2008 after which the plan is for post-cath to be admitted to Presby-hospital (adult facility) with plan for CT angiogram + pulmonology consultation. Possibly for 1-3 days (they may put me on some IV medications to see if my cath #’s or function change.
Stop by for any updates.